Thursday, October 23, 2014

Mirror, mirror, on the wall...


 Everything and everyone adapts with age. 
Even this oak found a way to surmount a host of obstacles, 
not the least of which are the eroding cliff 
it helps to shore up 
and the hunk of rock that its root system worked around 
for our photographing pleasure.



I have to learn to bite my tongue when someone suggests we need to embrace our aging selves. This message can mean anything, of course, from loving our wrinkles to merely accepting them. It can also mean stretching them to oblivion a la Joan Rivers, whose embrace of aging was to eye it head on and take heroic counter measures.

The version of the conversation that most rankles me has to do with insisting that we like how we look as we get older.

We change but our aesthetics don't. I prefer the picture of the Rae of 1977 to the picture of Rae in 2014. Sometimes I see a current photograph of myself I find acceptable. It has a lot more to do with lighting than with me, though. And when it comes to naked sex, who doesn't love candlelight?

Aging is hard. We’re not expecting it. We don’t understand what’s happening when it starts to make itself known. And most of our loved ones who are aging do so in quiet dignity for lots of reasons. Thus, we are not privy to vital wisdom that might inform this last leg of our journey.

And it is the last leg, long and fit and handsome as it might be in this moment, it is a leg that is going to give out — most likely little by little.

This week I reviewed Boston surgeon Atul Gawande’s must-have new book, “Being Mortal.” He lays out the aging process and what he says are the inevitable infirmities to come. Part of his message is that it’s best to be informed and prepared. But it’s also best to work toward living the fullest life you can up until the last breath. He says it’s not the good death we’re after here but the good life.

So what does my good life look like? It looks like a lot of time spent staying active, fit, well nourished and engaged. As I lose muscle, which has already happened and will just continue to happen, I do what I can to counter that inevitability. I am 66 and can still jog. I don’t say that with pride but with a certain trepidation. Every run ends with a thank you prayer to the universe and to my body. I don’t want to take anything for granted. I don’t want to feel smug about what is merely a gift. I don’t want to forget my underlying vulnerability and make a misstep that will set me back weeks, months or more.

How are Gawande and facelifts related? Because anyone who has a facelift has gone through a process of evaluation and reckoning. That person is looking at aging and saying: I am looking old and I’m going to do what I can to look the way I want to look in my oldness. That person pulls off the bandages and says: Call me empowered. I am doing it my way.

Joan Rivers was uncompromising in her push to live the good life. I saw her speak at Barnes & Noble two years ago and they practically had to drag her off the stage, she was having so much fun entertaining us with her stories.


"My makeup team is nominated 
for 'Best Special Effects'." 


Rivers persisted according to her own code of conduct. Right up until her last breath. It wasn’t easy, as anyone who’s read about her or who’s seen the recent documentary “Joan Rivers: A Piece of Work” knows. But she did what Gawande might have liked — she figured out how to do what made her happy in an aging body and she did it.

The Golden Rule, as some of us know, is flawed. It’s narcissistic. It’s not “Treat others as you wish to be treated.” It is: “Treat others as they would like to be treated.” 

Finally, when someone tells me to embrace my aging body, I need to stop and take a breath. What about what she’s saying am I’m not hearing?

Questions:
  • Do we need to like our looks to be holistically happy?
  • If we accept aging, will we then like our appearance?
  • Is attitude subject to the same timeline as aging? Perhaps I, too, will someday like what’s before me in the mirror?
  • Is it fair to ask an old person or a fat person to celebrate their body? In other words, how independent are we from the social norms that shape us? And isn’t my aesthetic, formed long ago, still valid even if I no longer reflect my own aesthetic?


I’d love this conversation to keep going. Please respond if you’re interested.


Below is my review of "Being Mortal" by Atul Gawande:


Atul Gawande: "Our reverence for independence 
takes no account of the reality of what happens in life."


'Live for now'


Being Mortal: Medicine and What Matters in the End
By Atul Gawande. Metropolitan Books, New York, 2014. 282 pages. $26.

Society is slow to change. We’ve learned how to treat diseases and conditions that, in the past, killed us well before our hair turned gray. But now that we know what to do, we don’t know when to stop doing it. Medical solutions are not always the best solutions. And yet “fix it” remains the mantra even when fixing it threatens great risk to quality of life.

Boston surgeon Atul Gawande’s new and important book, “Being Mortal: Medicine and What Matters in the End,” talks about the monumental change our society is undergoing with regard to how we care for the terminally ill, the aging and the infirm. He cites studies that highlight assisted living and hospice models that focus on “a good life to the end.” These models cost less, and they yield greater quality and length of life. Yet there has been no national call to action. As Gawande shows, there are alternatives to the traditional nursing home or ICU death that work and work well.

One hopes, when contemplating this must-read book, that “Being Mortal” will spark a vigorous national discussion and produce immediate imperatives. Gawande’s earlier book, “Checklist Manifesto,” about how to curtail hospital practices that lead to infections, among other things, was such a call to action.

"The story of aging is the story of our parts."
                                  — Atul Gawande


Gawande’s parents, who immigrated to Athens, Ohio, from India, were also doctors. Yet all three of them were at a loss when confronted with his father’s end-of-life issues. In “Being Mortal,” Gawande introduces us to people who were in their declining years or who were suffering terminal diseases. He shows us how they made medical decisions, and when and how they transitioned from seeking a medical solution to finding value in their last days and weeks. While all the people he follows in this book are affecting, none is more so than his father, who discovers he has a large tumor growing in his cervical spine. Options are limited and some options had the potential to severely restrict his father’s independence with consequences like paralysis. How far are you willing to go just to be alive?

Modern medicine has the potential to bring with it “new forms of physical torture,” writes Gawande. Anyone with a dying loved one who winds up on life support in ICU understands. There are no last words in the modern deathbed scenario, just a shutting down of machinery. Through hard questions and with the help of trained professionals like hospice workers, it’s possible to consider other options.

Gawande lays out the problems and the options. In 1945 most deaths occurred at home. In the 1980s, only 17 percent of deaths occurred at home, and those were most likely due to the fact that they were sudden, like heart attacks or injuries. On the plus side, in 2010, about 45 percent of deaths occurred with some kind of hospice care. But half of Americans are likely to spend one or more of their last years in a nursing home and this option is usually devastating.

“The waning days are given over to treatments that addle our brains and sap our bodies for a sliver’s chance of benefit. They are spent in institutions — nursing homes and intensive care units — where regimented anonymous routines cut us off from all the things that matter to us in life,” writes Gawande. “We have allowed our fates to be controlled by the imperatives of medicine.”

We revere independence, regardless of our medical condition. What happens when it can’t be sustained, asks Gawande? And yet, “serious illness or infirmity will strike. It is as inevitable as sunset.”

Gawande touches on one problem I see all too often. “We feel as if we somehow have something to apologize for” when the body starts to fail. Gawande briefly describes aging. Since no one likes to talk about these things, he does us a service explaining what’s happening to us and our loved ones. Some processes can be slowed with diet and physical activity, but they can’t be stopped. Things shrink, harden, leach, calcify and shut down. Aging most likely follows the classic “wear-and-tear” model more than genetic predetermination theories.

"The mantra was: live for now."


Our priorities are terribly askew. There aren’t even enough geriatric doctors to replace the ones who will retire and yet our elderly population grows and persists. In 30 years there will be as many people under 5 as over 80. Right now there are as many 50 year olds as 5 year olds.

In many ways, geriatrician Juergen Bludau encapsulates the main message of this book: The job of any doctor is to support quality of life — freedom from the ravages of disease as much as possible and retention of enough function for active engagement in the world. 
This is precisely the mission of geriatric and hospice care.

Much of the value of its book is in its very existence. It gives us a place from which to continue the discussion. Also valuable are the many anecdotes Gawande gives us — stories of people who are making a difference, either by their own examples or in their groundbreaking entrepreneurial efforts.

Among these is Keren Brown Wilson, who started the first assisted living home in Oregon in 1980s. It caught on like wild fire, of course. And there’s Bill Thomas at the
Chase Memorial Nursing Home in New Berlin, NY. After wrangling with a lot of red tape, he brought birds, dogs, cats and a garden into the daily lives of the people in this nursing home. Harvard-trained and a “serial entrepreneur,” he “put some life” in the nursing home and people who hadn’t spoken started speaking, while others started walking. “The lights turned back on in people’s lives,” writes Gawande. It was like  “shock therapy” for everyone involved. The number of prescriptions dropped by half and deaths dropped by 15 percent. “The most important finding was that it is possible to provide [people] with reasons to live.”

"We're caught in a transitional phase."


In the United States, 25 percent of all Medicare spending goes to the 5 percent of patients in the final year of their life and most of that money goes for care in the last couple of months. Whereas the hospice mission conveys a different message: Live for now, not what may be possible with more risky surgeries, chemotherapy and radiation.

Decision-making is very difficult, with 63 percent of doctors overestimating their patients’ survival time on average 530 percent of the time. And forty percent of MDs admit to offering treatments they know are unlikely to work.

“Those who saw a palliative care specialist stopped chemotherapy sooner, entered hospice far earlier, experienced less suffering at the end of their lives— and they lived 25 percent longer.” It’s Zen, says Gawande. “You live longer only when you stop trying to live longer.”

Rae Padilla Francoeur’s memoir, “Free Fall: A Late-in-Life Love Affair,” is available online or in some bookstores. Write her at rae.francoeur@verizon.net. Read her blog at http://www.freefallrae.blogspot.com/ or follow her @RaeAF.

6 comments:

  1. Thank you, Rae, for your comments, and your thoughtful review. I must read this book.

    For me, I do love my thirty-year-old look more than my sixty-year-old look. And I know I could get more exercise and eat better, but that's still not going to make me look thirty. The most sobering thought is finally realizing that this is all there is. And it's finite. Whew.

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  2. My comment disappeared, so here it is again (I hope). I will never go the Joan Rivers route (it's not for me), but I'm grateful to still be able to enjoy almost everything I care about--walking, gardening, traveling, writing, friends--and I'm learning to be careful with my remaining abilities so they don't become former abilities.

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  3. This is a stunning blog post and deserves to be widely read. Was I the one who distressed you with my raves about accepting and celebrating how we look? If so, although I'm sorry that you had to bite your tongue (that can be painful), I'm glad that you rebutted with this extraordinary piece. Thank you, Rae.

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  4. I've thought about this blog post for several days now and in answer to your question "Is it fair to ask an old person or a fat person to celebrate their body?" I say: sure. It is fair. Here's what's happened for me, and possibly others: after living with my body for so long and now, having felt pain I never used to feel, and see the erosion of time and all that -- i realize that I've been so lucky to have it. I appreciate my body more now, in its imperfection than I ever did when I was younger and, presumably, more appealing. I was hard on my body and now I listen to it. I'm glad it reminds me of the time that is passing right before my eyes. I don't love pain but I appreciate how it makes me pay attention to what is important. I spend less time denigrating my body these days and more time appreciating all that it has given me and continues to give me. I find myself looking past the age spots dotting my skin when I look at the mirror and smiling a bit more inside. I still have full possession of my brain (okay, maybe not FULL), my faculties, my sexuality -- I guess I've just decided to make friends with my body and that can lead to embracing it.

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  5. I don't necessarily like the exterior of aging, but the balanced interior certainly makes up for all the physical changes. Accepting who I am in this world has brought a smile to my face, which gets acknowledged long before the wrinkles do.

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  6. I should add that I have not exactly embraced certain aspects of my body - my hair, for example. I still color it and don't know when I will stop. Perhaps that will be the true test of my acceptance and delight in my physical self.

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